Posted by kelly pollard on May 3, 2011 at 1:38pm

FIXADENT - NOT JUST FOR TEETH ANYHMORE!

Whoever it was (think i remember from D. Prince?!) that used Fixadent on the lesions on their head should be elevated to sainthood! Ran out of my Pascalite Pak, which is fabulous, so resorted to the Fixadent morning and night after cleaning my scalp. Amazing! The vermin come up for air and get instantly trapped, suffocate and die. Each morning and evening I use the lice comb to lift everything off, which until this was extraordinarily painful no matter what I had been applying. The …

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Posted by Nancy J. Levy on April 30, 2011 at 12:48pm

instructions

THERE SHOULD BE A TAB WITH CLEAR INSTRUCTIONS like do i always sign in by clicking 'sign out' ? and more info on tabs exp; FORUM? MAIN? BLOGS/ DISSCUSSIONS/ etc;. and how do I get these q;s answerd without being a pain when im just learning and to whom do i ask? also i dont understand re; bottom of this page ; what is the difference between ' save as post' or pubish or draft! Hopefully if this sends and if someone responds Youll see Im actually usually inteligent …

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Posted by kelly pollard on April 26, 2011 at 4:34pm — 1 Comment

the Morgellons "Sparkle"

Has anyone noticed how the morgies sparkle when you burn them? It's become the way I know that what I have destroyed was indeed one of the bad guys. It has been suggested that these things have a trace amount of silver in them - which provides the spark... or maybe they have aluminum in them..which is what they are supposedly spraying out of the chemliners.. I believe this accounts for why we seem to have so many forest fires that are so hard to extinguish. Aluminum is a component in many… ...

 

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My name is [ name removed ]. I have a very strange disease, which is shared by thousands of people in this counry.

Please see The Morgellons Filarial Research Organization and The National Association for People with Unidentified Skin Parasites. In 1998 a doctor prescribed Permethrin for me over the phone because I said I had a rash and diarhea. He decided that I had scabies even though he did not examine me. The use of Permethrin caused a cutaneous larval migration that resulted in terrible skin lesions. I suffered with these for months. When the doctor finally saw me he said he did not know what was wrong but gave me Erythromycin and Ultravate skin cream, which made things worse.

I finally saw a naturopathic doctor who gave me bentonite clay to use as a paste on the lesions. This cleared them up. Many, many people are suffering from this disease and are being told that they are delusional by doctors who do not know what this is or will not say. I have a lot more info and would be glad to help your research in any way that I can. Please look at the sites I mentioned. I would also like to know how much bentonite to use internally. This disease involves more than the skin.

Thank you.

[ More ]

There is very interesting reading here on this "hair" and "fiber" disease, dating back hundreds of years. Blood tests on the little boy who provided the specimens for many of these pictures will be in tomorrow. I am going to send separately high mag images of what these fibers look like. Preliminary testing indicates a highly unusual and primitive fungus with "loose" DNA.

A blood smear from this child, taken at night, contained what was identified as a strongyle-type or onchocerca-type worm by a PhD in biology. When the CDC received this, they said it did not look like a parasite to them. I am attaching the story of what happened to my jackson chameleons after exposure to my well water.

Although we now have a kinetico water system, my pets and I still have many symptoms. I have not, however, had any lesions since 1998. This disease affects cold and warm-blooded animals, insects, birds and people. Some people think it may be related to volcanic eruptions, such as Mt. St. Helens. Other people think it the military doing testing.

I tend to think these organisms have always been around and maybe they only bother us, unintentionally, when they themselves get sick or when we are sick, from pollution, etc. They are really incredible little creatures. How miraculous to be able to pull a hair from your head and watch it dart its little sense organ at your skin, as if testing for safety, or to see it coil and stretch out, or swim in the water!

Of course, the many painful external and internal symptoms are not nice. Some people have had serious visual deterioration and pulmonary and heart trouble. Some people with lesions on their faces will not go out or shop late at night so others will not see them. It is heartbreaking.

When you think about all these people suffering with these terrible symptoms and being met by the medical profession with disinterest, hostility or outright persecution, and being told that they are delusional, it is incomprehensible. I went to one medical doctor who refused to look at my lesions or examine me, even though I begged him in tears, and then called mental health and told them I was mutilating myself.

So I had a call from them asking me why I was "mutilating myself." If something as inexpensive as bentonite could provide a solution or alleviate symptoms, what a blessing this would be. I will keep you posted.

Thank you for your very kind letter.

Date: May 26, 2006
From: Jason @ Eytons Earth
Format: Email
To: List Group
Modifications: Syntax, Format
RE: Recent reported outbreaks of Morgellons Disease in the Bay Area, California

My opinion is that these types of conditions are real. I don't believe that there is a single cause, but rather, a group of conditions that are not easily diagnosed that share many of the same symptoms ( hence Morgellons Disease ). The first time I came in contact with such a case, a whole family was infected, including their cat. This was somewhere around nine years ago.

The health department was called in to their house, but they could not identify a parasite or any other type of organism. One would definately have thought the entire family, including the cat, was insane.

However, I approached the situation with the assumption that there was an infection of some sort. Yes, these people were VERY mentally and emotionally disturbed. However, I figured that if I were experiencing what they were, I would likely be disturbed as well. On top of that, I'd never seen a psychotic cat before. The cat spent quite a bit of time just running around in circles.

The individual that had asked for my help complained about tiny "jumping threads" he could never see. He'd been tortured with this predicament for several years, describing a sensation of bugs crawling under his skin.

I had him leave the environment, and coat his entire body ( including the hair/head ) with natural bentonite clay. In very short order ( an hour ) he experienced the first moments of relief from this condition in years.

However, after a time, the sensations would return ( a day or more ). He would get temporary relief by repeating the clay coating on his body... Once, he did the clay therapy daily for two weeks and experienced complete relief during this time. However, it wasn't practical for him to continue due to work, etc.

I hypothesized that it may have been a parasitic condition, with a 3 week ( or longer ) life cycle. IF a parasitic infection, based on the complaints, I assumed it lived on the skin, or just beneath the skin, possibly incubating in the ears or hair.

I traced his infection back to a neighbor he once had who was an elderly woman originally from a remote tribe in Africa. The individual and his family had several unpleasant "neighborly" encounters with this individual; shortly thereafter became infected; then moved to a new area of town in hopes of finding relief.

On studying old remedies, I found that garlic was often used for parasites. Since I believed the infection was a skin infection with external body manifestations, I had the individual shower very well, apply clay over the entire body ( thinly coated but covering the skin ), and then allow the clay to dry. After the clay dried, the individual showered, and I tossed him a necklace with a few fresh cloves of garlic ( peeled ).

Having doned his garlic necklace, he never experienced discomfort again. I tried to get him to get rid of the garlic necklace ( of course, he always used more fresh garlic after a few days ) after a few months. However, he was terrified of a relapse, and did not want to be without it.

I saw this individual late last year; he was perfectly fine, yet still wearing the garlic necklace.

This was a very strange situation ( I still shake my head in amazement when considering the memory ), but I was pleased that years of suffering for this individual had been ended -- and permanently.

My experience with bentonite, montmorillonite and french illite clays is extensive, especially considering skin conditions. The only condition I have not seen a positive response to is conditions caused by substances such as Agent Orange, although long term topical treatment with clays made with fine quality colloidal waters may even impact these so-called "jungle rot" conditions.

A Sufferer's Report on a Unique Alternative Treatement for Morgellon's Disease
Please note that we have not tested this method, this came from a report posted on a health email list

For any of you following the mystery, or who knows about using alfalfa.... This was posted on a morgellons site today......................

I have been Morgellons sufferer for over ten years.

Recently, I discovered, quite by accident, something that is literally making it disappear from my BODY.

As I am sure fellow sufferers can relate to, over the years, I have experimented with various "super baths," filling the tub with hot water and puttibng in things like lemons ...

 

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Terrifying, painful, exhausting. When I have spoken with people who identify as having Morgellons disease, these are the words I hear. Most researchers and medical professionals consider Morgellons Disease (MD) to be synonymous with Delusory Parasitosis (DP), a false, unshakable belief that insects are living in or on your skin or inside your body. Yet, several small, concerted groups work to express it as a distinct medical condition.

Red and blue fibers, described as "Morgellons fibers".

MD was first described in academic literature in 2005, when an unidentified number of patients described itching, crawlingsensations, lesions, and the eruption of red and blue fibers and “granules” from their skin. Most had Lyme disease, and MD was thought to be significantly related to that (Savely & Leitao, 2005). Recently, agrobacterium was indicted as the new culprit, when two self-identified MD patients with scleroderma were found to have increased amounts of cellulose-protein complex in their connective tissue (Savely & Stricker, 2007, Harvey et al, 2009). A multi-systemic medical framework for MD with immunodeficiency problems has been described (Harvey et al, 2009).

Lesions, attributed to Morgellons Disease.

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The majority of physicians and researchers consider MD to be synonymous with DP (Murase, Woo & Koo, 2006), with the difference that it is not believed to be parasites, but about the fibers and granules (Robles et al, 2008). In response, proponents of MD as amedical condition herald it as different from DP, citing a “lack of pre-existing psychopathology” (Savely & Stricker, 2007). Yet, a study by Harvey et al (2009) found 25 self-diagnosed MD participants all had previous diagnoses of DP, and 23 had other previous diagnoses, including bipolar disorder, attention-deficit disorder, and obsessive-compulsive disorder, the symptoms of which coincided with the onset of their MD symptoms. These psychological diagnoses have many somatic connections, and their medications commonly have side effects of itching, crawling, and tingling sensations (Hinkle, 2000), indicating that a psychological composition of MD is very likely.

Some will disagree with a psychological conceptualization of MD, and firmly believe that this is a distinct medical condition. In fact, a DP diagnosis is not always accurate, such as with cutaneous myiasis, where fly larvae inhabits the skin of a person (Barros et al, 2010). Medical and scientific knowledge, and identification of new pathogens, diseases, and treatments, continually occur.

The burden of proof is on the advocates for MD to be a distinct medical condition. In my opinion, mental health should be recognized as the possible, if not probable foundation of MD. Fibers and granules of dirt and debris are everywhere. Increased cellulose-protein complex in two patients who also have scleroderma is still distant from being definitive. Harvey’s study found many vague health anomalies, yet the autoimmune problems sound like what one would expect from intense stress (Khansari et al, 1990). What would be more stressful than the real or perceived experience of an infestation of the most personal and offensive kind, the body?

Dr. Harvey recommends that we be open and skeptical, and I agree. The CDC is in the data-analysis stage of an investigation of MD through Kaiser in Northern California. As a scientist and as a person who is aware of the suffering of people with these experiences, I look forward to the results.

Sarah Bione-Dunn is a doctoral candidate in clinical psychology at Alliant International University. She expects her degree in June, 2010.

de Barros N, D’Avila MS, de Pace Bauab S, Issa FK, Freitas FJ, Kim SJ, Chala LF, & Cerri GG (2001). Cutaneous myiasis of the breast: mammographic and us features-report of five cases. Radiology, 218 (2), 517-20 PMID: 11161171

Harvey WT, Bransfield RC, Mercer DE, Wright AJ, Ricchi RM, & Leitao MM (2009). Morgellons disease, illuminating an undefined illness: a case series. Journal of medical case reports, 3 PMID: 19830222

Hinkle, N. (2000). Delusory Parasitosis. American Entomologist, 46 (1), 17-25

Khansari, D., Murgo, A., & Faith, R. (1990). Effects of stress on the immune system Immunology Today, 11, 170-175 DOI: 10.1016/0167-5699(90)90069-L

Murase JE, Wu JJ, & Koo J (2006). Morgellons disease: a rapport-enhancing term for delusions of parasitosis. Journal of the American Academy of Dermatology, 55 (5), 913-4 PMID: 17052509

Robles DT, Romm S, Combs H, Olson J, & Kirby P (2008). Delusional disorders in dermatology: a brief review. Dermatology online journal, 14 (6) PMID: 18713583

Savely G, & Leitao MM (2005). Skin lesions and crawling sensations: disease or delusion? Advance for nurse practitioners, 13 (5), 16-7 PMID: 15898309

Savely VR, Leitao MM, & Stricker RB (2006). The mystery of Morgellons disease: infection or delusion? American journal of clinical dermatology, 7 (1), 1-5 PMID: 16489838

Savely, V., & Stricker, R. (2007). Morgellons disease: the mystery unfolds Expert Review of Dermatology, 2 (5), 585-591 DOI: 10.1586/17469872.2.5.585

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Morgellons: A hidden epidemic or mass hysteria?

It's a mysterious condition that affects tens of thousands worldwide. But what is it?

Optical image of what sufferers are adamant are morgellons fibres in skin samples - are they made up of alien ­matter, or are ­everyday materials the more likely explanation? Photograph: Vitaly Citovsky/Suny at Stony Brook

It all started in August 2007, on a family holiday in New England. Paul had been watching Harry Potter And The Order Of The Phoenix with his wife and two sons, and he had started to itch. His legs, his arms, his torso – it was everywhere. It must be fleas in the seat, he decided.

But the 55-year-old IT executive from Birmingham has been itching ever since, and the mystery of what is wrong with him has only deepened. When Paul rubbed his fingertips over the pimples that dotted his skin, he felt spines. Weird, alien things, like splinters. Then, in 2008, his wife was soothing his back with surgical spirit when the cotton swab she was using gathered a curious blue-black haze from his skin. Paul went out, bought a £40 microscope and examined the cotton. What were those curling, coloured fibres? He Googled the words: "Fibres. Itch. Sting. Skin." And there was his answer. It must be: all the symptoms fitted. He had a new disease called morgellons. The fibres were the product of mysterious creatures that burrow and breed in the body. As he read on, he had no idea that morgellons would turn out to be the worst kind of answer imaginable.

Morgellons was named in 2001 by an American called Mary Leitao, whose son complained of sores around his mouth and the sensation of "bugs". Examining him with a toy microscope, Leitao found him to be covered in unexplained red, blue, black and white fibres. Since then, workers at her Morgellons Research Foundation say they have been contacted by more than 12,000 affected families. Campaign group the Charles E Holman Foundation states there are sufferers in "every continent except Antarctica". Thousands have written to Congress demanding action. In response, more than 40 senators, including Hillary Clinton, John McCain and a pre-presidential Barack Obama, pressured the Centres For Disease Control And Prevention (CDC) to investigate; in 2006, it formed a special taskforce, setting aside $1m to study the condition. Sufferers include folk singer Joni Mitchell, who has complained of "this weird incurable disease that seems like it's from outer space... Fibres in a variety of colours protrude out of my skin: they cannot be forensically identified as animal, vegetable or mineral. Morgellons is a slow, unpredictable killer – a terrorist disease. It will blow up one of your organs, leaving you in bed for a year."

So it's new, frightening and profoundly odd. But if you were to seek the view of the medical establishment, you'd find the strangest fact about this disease: morgellons doesn't exist.

I meet Paul in a pub in a Birmingham suburb. He shows me pictures he's collected of his fibres. On his laptop, a grim parade of images flicks past. There are sores, scabs and nasal hairs, each magnified by a factor of 200. In each photo there is a tiny coloured fibre on or in his skin.

"Is it an excrement?" he asks. "A byproduct? A structure they live in?" A waitress passes with a tray of salad as he points to an oozing wound. "Is it a breathing pipe?"

Paul absent-mindedly digs his nails into a lesion just below the hem of his shorts. Little red welts pepper his legs and arms, some dulled to a waxy maroon, others just plasticky-white scar tissue.

He has seen an array of experts – GPs, allergy doctors, infectious diseases clinicians and dermatologists. Most end up agreeing with the skin specialist to whom he first took samples of his fibre-stained cotton: his sores are self-inflicted and he suffers from delusions of parasitosis (DOP), a psychiatric condition in which people falsely believe themselves to be infested. This particular form of DOP is thought to be unique, in that it's spread through the internet. Whereas in the past, episodes of mass hysteria were limited to small communities – perhaps the most famous being the witch panic in Salem, Massachusetts in the 1690s – today, imagined symptoms can spread much farther on the web.

Paul is not convinced by this diagnosis. He carries an alcohol hand gel everywhere he goes, has four showers a day and steam-cleans his clothes. The stress leaves him exhausted, short-tempered. He has difficulty concentrating or applying himself at work. His lowest points have been "pretty much feeling like ending it. Thinking, could I go through with it? Probably. It's associated with the times the medical profession have dismissed me. It's just… I can't see myself living for ever with this."

Has he mentioned these thoughts to his doctor?

"No, because talking about things like that adds a mental angle – supports the prognosis of DOP. And it's absolutely a physical condition. I mean, look!"

The evidence on his computer does appear convincing. Much thinner than his body hair, the fibres seem to be protruding from his sores. But what are they? And how did they get there? To find out, I'm heading to the 4th Annual Morgellons Conference in Austin, Texas, to meet a molecular biologist who doesn't believe the medical consensus. Rather, he argues, the forensic tests he's commissioned on the fibres point to something altogether more unworldly.

In spring 2005, Randy Wymore, associate professor of pharmacology at Oklahoma State University, stumbled across an article about morgellons. Reading about the fibres sufferers believed were the byproduct of some weird parasite, but which were dismissed by dermatologists as humdrum environmental detritus, he thought, "But this should be easy to figure out." He emailed sufferers, requesting samples, then compared them with samples of cotton, nylon, carpets and curtains. Examining them under the microscope, he got a shock. The sufferers' fibres looked utterly different.

Wymore arranged for fibre analysis at the Tulsa police department's forensic laboratory. Moments into his tests, a detective with 28 years' experience of this sort of work murmured, "I don't think I've ever seen anything like this." The morgellons particles didn't match any of the 800 fibres on their database, nor the 85,000 known organic compounds. He heated one fibre to 600C and was astonished to find it didn't burn. By the day's end, Wymore concluded, "There's something real going on here. Something we don't understand at all."

Last year, he approached several commercial laboratories to run further tests, but the moment they discovered the job was related to morgellons, firm after firm backed out. Finally, Wymore found a lab prepared to take the work. It is these results that will be revealed during the course of the two-day conference.

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American Medical Association (AMA) News Release; “Morgellons is Systemic” – Far Too Many Suicides

Small Bowel Capsule Findings Suggest that Morgellon’s Disease has an Organic Basis and is Not Psychosomatic in Origin!

Morgellons Lesions with Blue Fiber

Daniel Chao, MD, David Cave, MD, PhD University of Massachusetts Medical Center, Worcester, MA.

Purpose: Background: Morgellon’s disease is a poorly described, severe ulcerative skin condition that histologically is consistent with dermatitis artefacta. It has therefore been dismissed as a psychosomatic disorder, much as was the case with ulcerative colitis in the period from 1930 to 1960. We present the first case of a patient with Morgellon’s syndrome who had additional findings suggesting that it is a systemic disease. continue reading…  .....

 

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"Whoever it was (think i remember from D. Prince?!) that used Fixadent on the lesions on their head should be elevated to sainthood! Ran out of my Pascalite Pak, which is fabulous, so resorted to the Fixadent morning and night after cleaning my scalp. Amazing! The vermin come up for air and get instantly trapped, suffocate and die. Each morning and evening I use the lice comb to lift everything off, which until this was extraordinarily painful no matter what I had been applying. The … "

(see this article below)

"...There is no cause; however, there is prevention and relief to be had. If our internal terrain is failing, lacking: minerals, vitamins, amino acids, PH, healthy gut flora, and oxygen and if we are not staying hydrated, eating nutritiously and strengthening positive emotions we then become prime target for disease.  Of course, there is some catalyst, or vector probably a fungal element from GMO pharming or something, but it will not take hold in those with a strong terrain and we can all strengthen our terrain and become at least "symptom free", I hesitate to use the word cured."

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